 |
        |
SELF HELP
GROUPS
The Medical Profession
helping those in their care gain maximum help and support.
| Pain Management | ||
| Infections diseases | ||
| Kidney | Valued Citizens, Retired People. | |
| Lung (breathing, including asthma) | ||
| Deafness, Ear, Nose and Throat | Men's Health | |
| Diabetes | Mental Health |
Directory of National Genetic Voluntary Organizations
World
Health Organization
Provides health information and statistics from around the world;
outbreaks, newsletters, World Health Report, etc.
CARING
ABOUT CARERS
Government information for Carers
YOUR
SURGERY
Having Surgery? Learn about the surgical procedure.
Brain
Stem Disease,Open
Forum Discussion on
Brainwave
Brainwave is committed to providing therapy programmers
for brain injured . Many people have been helped with individual therapy
programmers allowing them to lead more normal and a more independent life.
British
Red Cross
One of the best known charities, the British Red Cross responds
to disasters and emergencies world wide. They also offer a range
of services to meet the personal tragedies of individuals.
British
Safety Council
The British Safety Council is the largest independent industrial
safety body in the world. It trains 19,000 people a year in accident prevention
techniques and safety management.
Child
Accident Prevention Trust
Child Accident Prevention endeavours to reduce the number and
severity accidents involving children.
Childrens
Head Injury Trust
The Childrens Head Injury Trust helps Children with head injuries
and their Families.
Compassionate Friends - Chat Room (USA) A bereavement chat room for parents who have lost a child of any age.
Reach personal injury services limited, www.reachpersonalinjury.com is one of the country's leading brain injury rehabilitation organisations, offering an effective alternative to residential centres. Covering the whole of the United Kingdom, we provide a high quality service that delivers one-to-one personal programmes with faster and more targeted rehabilitation.
Roadpeace
Roadpeace makes available support to those bereaved and injured
due to a road crash.
Royal
Society for the Prevention of Accidents
Information and advice on preventing accidents in the home and
workplace.
St.
John Ambulance
Number one for First Aid. (There music is not bad too)
Trauma
After-Care Trust (TACT)
Post Traumatic Stress Disorder,
(PTSD) can affect anyone. When it does, this is where information and
help is on offer
Trauma
Home Page
The University of Texas website dealing with injury, injury prevention
and critical care.
TRAUMA.ORG:
Care of the Injured
A useful collection of information,
resources and links, with headings which include what's new, mailing list,
trauma chat, moulage (a practice scenario for patient assessment and management),
Web links, contact, meetings and traumabank.
Victim
Support Scotland
Support for victims of crime. Free and confidential independent
help and information about compensation.
UK
Trauma Audit and Research Network
Collects and analyses clinical
and epidemiological data and in so doing provide a statistical base to
support clinical audit, aid the development of trauma services and inform
the research programme.
Addictions (Drugs, Alcohol, Smoking)
Action on Smoking and Health (ASH)
AddAction
Help for individuals and the public on drug and alcohol misuse.
Addiction
Recovery Foundation
Information on addiction recovery. Lists of self-help groups and
treatment centres.
Al-Anon
Family Groups UK and Eire
Help for alcoholics and their famlies.
Alcohol
Concern
Alcohol Concern is concerned about alcohol misuse and works
to reduce the effects of alcohol misuse and to develop the quality services
for persons with drinking problems and their families.
Alcohol
Recovery Project
Alcohol support services with 30 years experience. Is dedicated
to reducing the destruction caused by problem drinking to both the individual
and society.
Alcohol
Services
A directory of alcohol services available.
APAS
(Alcohol Problems Advisory Service)
APAS is an independent source of services intended to reduce the
harm alcohol causes to individuals, families and the community
Atlas
Healthcare
Residential detoxification and rehabilitation centre for persons
with alcohol problems.
Cascade (Solihull,
near Birmingham.)
A drug information service for young people, by young people.
Centre
for Recovery
Information and support for persons with alcohol or drug problems.
Check
It (drugs information)
The London Metropolitan Police Service Website for young
people, drug facts, where to get help.
Detox in England
Detoxin England offers a service for drug takers to get clean
and stay clean.
Smoking: 'Don't give up giving up' - Tobacco Education Campaign.
Fastforward
Fastforward encourages healthy living through education
and concertrates on the prevention of drug alcohol and tobacco misuse.
GamCare
(gambling)
Anti gambling information and education. Includes a helpline for
persons with gambling problems.
Institute
of Alcohol Studies
The Institute of Alcohol Studies aims to increase knowledge of
alcohol misuse and the social and health cost of its abuse.
National Association
for Children of Alcoholics
This nonprofit organisation works on behalf of the children of
alcoholics.
National Clearing House for Alcohol and Drug Information (American)
N
E Choices
NE Choice provides young people with clear and honest information
about drugs.
Oxfordshire Council on Alcohol and Drug Use
PROMIS
Recovery Centre
A treatment centre for persons with addictive or compulsive disorders,
based upon the philosophy of Alcoholics Anonymous
Re-solv
The Society for the prevention of solvent and volatile substance
abuse.
Release
Support for people who
have problems with drug or substance misuse.
Standing
conference on drug abuse (SCODA)
Try to reduce the harmful effects of drug use through debate,
the promotion of good practice It is an independent organisation,
providing a voice for drug services and others concerned about the effects
of drug use on individuals and communities.
Trashed
Drug information from the Health Education Authority.
Turning
Point
A national charity offering help to people with drink, drug and
mental health problems with more than 60 centres throughout the UK.
AIDSmap
Leading provider of professional HIV and AIDS treatment,
services and information - massive database of AIDS and HIV treatment
information and services.
AVERT
Information about AIDS & HIV, health promotion as well
as information about transmission and testing.
Cardiff Body Positive
A self-help organisation in Wales for people living with and affected
by HIV and AIDS.
Children
With AIDS Charity (CWAC)
Children With AIDS seeks to help children and their families infected
by HIV and AIDS, with support which allows them to
lead as near normal a life as possible.
Community
AIDS Support Team
HIV/AIDS International News Headlines (updated daily) from this
Lancashire based support team.
Crusaid
Crusaid cares for people with HIV and AIDS
European information center
for HIV and AIDS
HIV Care
HIV Care provides objective information to assist people living
with HIV/AIDS.
National
AIDS Trust (NAT)
AIDS research, with information on drug trials, vaccine developmen,
treatments, care, self-help, and HIV/AIDS organisations around the
world.
Positive
Nation
Positive Nation represents all people affected by HIV / AIDS in
the UK.
Terrence Higgins Trust
This London based organisation provides information and
support to people living with HIV and AIDS
Arthritis
Research Campaign
Funds medical research into the cause and cure of arthritis. Also
produces a full range of free information booklets covering all types
of arthritis and rheumatic diseases.
Behcet's
on the Web
Information on Behcet's Syndrome.
British
Sjogrens Syndrome Association
This organisation provides information and advice on Sjogren's
syndrome. (Membership £10 per annum.)
Fibromyalgia
Association UK
A fibromyalgia support group.
Fibromyalgia
Support Northern Ireland
A fibromyalgia support group in Northern Ireland.
Fibromyalgia
Support (UK-FMS)
A fibromyalgia support group online with links to other
sites.
International
League of Associations for Rheumatology
International organisation for rheumatology, links for to
other sites.
Lupus
UK
Lupus UK supports people who suffer from the autoimmune complaint,
systemic lupus erythematosus.
Lupus
Trust from St Thomas' Hospital, London
Information and support for lupus and other connective tissue
diseases.
National Back Pain Association
National
Osteoporosis Society (NOS)
This national charity is committed to promoting bone health and
stamping out osteoporosis.
Osteoporosis and Bone
Diseases
European organisation for osteoporosis and bone disease.
Psoriatic Arthropathy
Alliance (PAA)
The PAA is committed to helping people and raising awareness of Psoriatic
Arthritis and Psoriasis.
Raynaud's
& Scleroderma Association
Information support, and advice for sufferers and their families
of Raynaud's and scleroderma.
RSI-UK (Repetitive Strain Injury)
Stuart
Strange Trust
The Stuart Strange Trust supports sufferers of Wegener's Granulomatosis,
and their families.
Action
for Blind People
A national charity which supports the blind and partially sighted,
helping them to enjoy equal opportunities in work, leisure, housing and
home.
Association
of Blind Asians
This organisation for blind or partially sighted Asian people,
promotes their welfare.
A-Z
to Deafblindness
Help for blind, deaf people and those who provide services them.
British
Computer Association of the Blind
Help and information for the visually impaired who work or have
an active interest in computers.
British
Retinitis Pigmentosa Society
A self help group for members with visual problems.
British
Sjogrens Syndrome Association
This organisation offers information to members on Sjogren's syndrome.
(Membership £10 per annum.)
British
wireless for the blind fund
The radio cassette recorder developed by this organisation for
the blind, is designed for reliable service.
Dancing
Eye Syndrome Support Trust
This organisation provides a centre for parents of children with
D.E.S. giving them an opportunity to communicate with others in the same
situation.
Deafblind
Link
Help for blind, deaf people and those who provide services them.
Deafblind
UK's Scottish Website
A Scottish organisation for people who are deafblind.
Deafblindness
Web Resource
Information on deafblindedness with links to other sites.
International Glaucoma Association
Leber`s
Hereditary Optic Neuropathy Trust
Infomation available on Leber's Hereditary Optic Neuropathy.
Listening
Books
Audio books from Listening Books are available for the blind and
partially blind at home and elsewhere such as hospital, care home, special
school, etc.
Micro & Anophthalmic
Childrens Society
Support for families of children with Anopthalmia
(Eyelessness), Microphthalmia (Small eyes) and Coloboma (a structural
eye defect).
National Eye Institute (USA)
National
Library for the Blind
A huge braille lending library.
Nystagmus
Action Group
Action Group for Nytagmus a condition with rapid and jerky eye
movements.
Retinoblastoma
Society
Support and information for people with retinoblastoma and their
families.
Royal
National Institute for the Blind
A leading UK organisation for the blind.
Royal
London Society for the Blind
A provider of education, training, and employment for blind and
partially sighted people.
Royal
National College for the Blind
The UK's principal college for nationally recognised academic
and vocational qualifications for people who are blind or partially sighted.
(residential)
Seeability
This organisation helps people with other disabilities, who are
visually impaired, to develop skills and independence, improving
the quality of their lives.
Talking Newspaper
Association of the UK
A national charity which provides newspapers and magazines
on audio cassette for blind, visually impaired and disabled people.
Voluntary
Transcribers Group
These volunteers write braille.
Wireless
for the Blind
This organisation supplies radios, cassette players and TV sound
receivers to the registered blind.
Blood, Lymph and Immune System
Anaphylaxis campaignThis organisation offers information and campaigns to raise awareness of food allergies such as nut allergy.
An Arm and A
Leg Ltd
In house treatment for lymphoedema and lipoedema.
Aplastic
Anaemia - Leukaemia Research Fund
Information on this condition its causes, signs and symptoms,
plus diagnosis, treatment and prognosis.
Cystic
Hygroma and Hemangioma Online Support Group
A support group for suffers of Cystic Hygroma (lymphangioma)
Haemophilia
Society
Information and advice on haemophilia and how it affects
people.
Immunodeficiency Disorders (USA)
Lymphoma
Association
A resource for healthcare professionals provided by the Lymphoma
Association.
Lymphoedema
support network
Lymphoedema support network offers support, help and information
to those affected by lymphoedema.
Primary
Immunodeficiency Association
Information help and support for people with a primary immune
deficiency condition.
Sickle
cell society
A national charity working with people who have Sickle Cell Disease.
Sickle
cell society (different society from that above.)
Help for people who are sickle cell sufferers.
Adenoid
Cystic Carcinoma (ACC) support
Information on this condition.
Anthony
Nolan Bone Marrow Trust
We've all heard of this organisation.
Association of Cancer Online Resources (USA) ACOR is currently offering 70 Online Cancer Information and Support Electronic Groups, providing support to 35266 patients, caregivers, or others
Breast
Cancer - are you aware?
Contact details on organisations which give support and information
to those affected by breast cancer.
Breast Cancer Care
Information for those who are concerned they may get breast cancer.
Breast Cancer Chat Room (Cancer Information and Support International)
British
Acoustic Neuroma Association
A patient lead and administered information and mutual aid group.
British
Colostomy Association
Provides practical information and support for people who will
have a colostomy and those who have already had a colostomy.
CancerBacup
CancerBacup offers information and support for people with cancer.
Cancer
Information
Information on cancer
Cancer Medicine On-line, cancer related educational materials
Cancer Research Campaign
A leading Cancer Organisation with information including Causes,
Warning signs, Treatment and Reducing the risk of cancer.
Cancer Survivors IRC channel (Chat)
Cancer Survivors OnLine (USA) a site produced by a family affected by cancer and provides information, resources, and links related to various cancer topics.
CancerWeb
More information on cancer.
Christie
Hospital NHS Trust
Information on cancer and its treatment for patients, their families,
healthcare professionals and research workers.
Everyman
- action against male cancer
The Institute of Cancer Research's crusade to raise awareness
of testicular and prostate cancer.
Foundation
for Children with Leukaemia
Research into Leukaemia is the principal objective of this organisation.
Give
Hope Brain Tumour Support
Information for patients and carers on existing resources .
Guide
to Internet Resources for Cancer
Newcastle Universities resource guide.
Imperial
Cancer Research Fund
The UK's largest cancer research institute is committed to saving
lives through research and prevention.
Institute
of Cancer research
Links to cancer information, support and resources.
Leukaemia
Research Fund
Information on leukaemia, Hodgkins disease, lymphomas and myeloma.
Lymphoma
Association
Help for people affected by lymphatic cancer
Marie Curie Cancer
Care
Expert cancer care, (free)
Medulloblastoma and PNET brain tumours mailing list
This is a mailing list for
patients, parents and health professionals for the discussion of
medulloblastoma and PNET brain tumours
OncoChat an Internet Relay Chat (IRC) channel providing an informal peer support network for cancer patients, survivors, family and friends.
Orchid
Cancer Appeal
Seeks to increase public awareness of Men’s cancer (testicular
and prostate cancers)
Ovacome
A support group for sufferers of ovarian cancer, their families,
carers and health professionals.
Retinoblastoma
Society
This organisation offers information and support for people with
retinoblastoma.
Roy Castle Cause For Hope Foundation
Sapient Health Network (USA) health information service developed for people with serious illnesses. There are on-line chats relating to prostate cancer, breast cancer, and gynecological cancer.
Womens Nationwide Cancer Control Campaign
Breast Cancer Chat Room (Cancer Information and Support International)
Cancer Chat (4-Lane.Com)
Cancer Survivors IRC channel (EFNet)
Cancer Survivors OnLine (USA) a site produced by a family affected by cancer and provides information, resources, and links related to various cancer topics.
IRC Cancer Chat Ring a web ring linking participating internet chat / web pages.
OncoChat an Internet Relay Chat (IRC) channel providing an informal peer support network for cancer patients, survivors, family and friends.
Sapient Health Network (USA) an interactive health information service developed for people with serious illnesses. There are organised on-line chats relating to prostate cancer, breast cancer, and gynecological cancer. Requires free registration + personal details.
The Compassionate Friends - Chat Room (USA) A bereavement chat room for parents who have lost a child of any age.
AD/HD
(Attention Deficit Hyperactivity Disorder) Support
An organisation for this disorder in the Bedford, North Bedfordshire,
Buckinghamshire areas, also welcome enquires and contacts from around
the world.
After
adoption
An independent agency offering an after adoption service (to children
and adults) .
Allergy-induced
Autism Network
The purpose of this organisation is to initiate medical research
and provide support for families of those with Autistic Spectrum Disorders.
Anorchidism
support group
Information for people affected by the absence of the testes.
Anti-bullying
campaign - (abc)
Anti bullying in school camoaign.
Association
for Spina Bifida and Hydrocephalus
Information on spina bifida, and hydrocephalus.
Association
of Youth with M.E.
A registered charity committed to helping, supporting and giving
essential contact to children with Myalgic Encephalomyelitis (M.E).
Attention deficit disorder in the UK
Attention
deficit (Thanet ADDers U.K)
Infomation on Attention Deficit (Hyperactivity) Disorder
from support group.
Baby Directory
(The)
Pregnancy, baby and under fives guide.
Barnardo's
This outstanding organisation works with children who have problems
such as educational difficulties, disability, sexual, physical or emotional
abuse.
Birth
Defects Foundation
This foundation researches birth defects, handicap and disorders.
It also gives support and information to families.
British
Agencies for Adoption and Fostering (BAAF)
BAAF promotes good procedure in adoption and fostering services.
British Institute For Brain Injured Children
Brittle
Bone Society
A UK charity which supports people who suffer from osteogenesis
imperfecta (Brittle bone disease) and their families.
Centrepoint
Helps with accommodation for young people ensuring they are not
at risk because they do not have a safe place to stay.
Cerebral
pasy - Scope
Help and support for those with cerebral palsy and their famlies.
Child
Growth Foundation
The Child Growth Foundation endeavors to make certain that every
child's growth is regularly checked and cares for those with growth problems.
Childline
National helpline for children and young people. (Free)
Children
in Scotland
An association of voluntary and professional organisations
working with children and their families in Scotland.
Children
of high intelligence
Support for children of high intelligence. Promotes a high standard
of teaching and assessment for intelligent and gifted children.
Children's
legal centre
The Children's legal centre offers a free and confidential advice
service covering all aspects of law.
Children's
Liver Disease Foundation
Caring for children who suffer from liver disease and families
.
Children
With AIDS Charity (CWAC)
Children With AIDS Charity concerned with helping children infected
by HIV and AIDS, and helps them and their families lead as near normal
a life as possible.
Christian
Child Care
Seeks to provide a response to the needs of children, regardless
of race, religion, or any other factor.
Cleft
Lip and Palate Association
This organisation helps those who are affected by
cleft lip and palate.
Community
Hygiene Concern
Committed to promoting awareness of parasitic disease (
head lice.)
Contact
a Family
Contact a family helps many families who care for children with
disability or special need.
Council
for Disabled Children
Promotes cooperative work between organisations which provide
services and support for children and young people with disabilities and
special educational needs.
C.R.I.S.P
(Scotland)
Chromosome Rarities Information and Support for Parents.
Crohn's
in Childhood Research Association (CICRA)
The CICRA is committed to fostering a wider understanding of inflammatory
bowel disease (Crohn's disease and Ulcerative colitis), mainly as it affects
children and young adults. Information leaflets and other literature available.
Downs Syndrome
Association
Help for people with downs syndrome and their families.
Dreamflight
Dreamflights objective is to send seriously ill children on a
'holiday of a lifetime' to Disneyworld in Florida.
Elizabeth
Foundation
Promotes the early detection of deafness in children.
Enuresis
Resource and Information Centre (ERIC)
Present advice and information on bed wetting.
Gingerbread
A leading support organisation for single parent families.
Hyperactive
Children's Support Group
This organisation offers help and support to hyperactive children
and their families.
Jane's Breastfeeding and Childbirth Resources
Kids
Link
Information and support for parents of Children with 'Special
Needs'. Contains an Extensive A-Z list of Links.
KIDSMEDS
Provides pediatric drug information to parents and health professionals.
Live chats about discipline,
medical info, nutrition, twins, teenagers etc. (USA)
Makaton
Vocabulary Development Project (MVDP)
Help for children and adults who have communication and learning
difficulties.
Mencap
- for Mentally Handicapped Children and Adults
Mencap is a leading charity working with people with learning
disabilities in the UK.
National
Association for Children of Alcoholics
This organisation works on behalf of the children of alcoholics.
National
Association for the Education of Sick Children
Make certain that Local Education Authorities carry out their
statutory duty to provide suitable education for sick children.
National
Association for Gifted Children
Providing help, support and encouragement to gifted children and
their families.
National
Association for special Educational Needs
Sponsors the development of children and young adults with special
educational needs.
National
Ass. of Toy and Leisure Libraries / Play Matters
A toy libraries loan service.
National
Children's Bureau
Advances the interests of children and young people.
NCH
Action for Children
The UK's largest child's charity.
Nephrotic
Syndrome In Children Support Group
A support group for children and their families suffering from
Nephrotic Syndrome.
Nigel
Clare Network Trust
Support for families where a child's life is shortened.
National
Society for the Prevention of Cruelty to Children (NSPCC), The
Protection for children who
are at risk.
One
Parent Families Scotland
Making it possible for lone parents to achieve their full potential.
One
Parent Family Holidays
Holidays arranged by this non profit making organisation for one
parent families.
Parentline
Helpline and support for families caring for children who
are experiencing problems.
Parents
of Perthes Support Group
Advice, information and support for Perthes disease suffers.
PEDINFO
Information for pediatricians and parents; children's hospitals,
disease, etc.
Parentsplace.com
Baby, pregnancy, breastfeeding, children's health and education:
parenting, chat forums, single parenting, twins, fathering, disabilities,
etc.
Pediatric
Points of Interest - Johns Hopkins U.
Information on hospitals, resources, parenting, patient education,
etc.
REACH
An organisation for Children with Hand or Arm Deficiency.
REACT
Research Education and Aid for Children with incurable illness.
Research
Trust for Metabolic Diseases in Children
Funding medical treatment, care and research in metabolic diseases
in children.
Rescue Foundation For The Brain Injured Infant
Scottish Society for Autistic Children
Scope
Information on Cerebral palsy.
Society for the Autistically Handicapped
Starlight
Foundation
Grants wishes to children who are incurably ill.
Tofs
TOFS is a Support Group for children born with Tracheo-Oesophageal
Fistula.
Twins
and Multiple Births Association
Tinnitus
treatment in HADASSAH medical center
The treatment of Tinnitus (hearing sounds
in one's ears or head) at Hadassah, Jerusalem
UK
Child Growth Foundation
For children and adults with growth conditions.
UK
mums online
A parenting website and magazine for parents
Who Cares
Trust (the)
A national charity for children and young people who are living
in residential or foster care.
Young
Minds
Their aim is to promote the mental health of children and young
people.
Deafness, Ear, Nose and Throat
British Deaf Association
A foundation for deaf people focal point for deaf people to share
ideas and experiences.
Breakthrough
Deaf-Hearing Integration
Developing innovative work with deaf and hearing people which enables
them to improve their quality of life through contact, information and
training.
DeafMail
A non-profit making email-orientated deaf organisation and social
club.
Defeating
Deafness (The Hearing Research Trust)
Defeating Deafness is a unique national charity dedicated to encouraging
and supporting medical research.
Deafblindness
Web Resource
An internet site with information on deafblindedness, links to
other related sites.
Deafblind
Link
Support for blind, deaf people and especially people who are deafblind.
Deafblind
UK's Scottish Website
Information on Deafblind UK's work in Scotland.
Elizabeth
Foundation
An organisation for deaf babies and young children. ( 0-5 yearsold)
Hearing
Dogs For Deaf People
Supplies specially trained dogs to alert deaf people to
sounds such as phones ringing.
Natonal
Deaf Children's Society
This large,leading UK charity is committed to theneed of all deaf
children, there parents and careers.
Royal Association in
Aid of Deaf People
RAD strives to meet the individual needs of Deaf children and adults and
deafblind people through the provision of services and the use of RAD
Centres for Deaf People. Operates in London, Kent, Surrey, and Essex.
RNID
- Royal National Institute for Deaf People
Support for the Deaf.
Sense,
The National Deafblind and Rubella Association
Social Hearing
Impaired People's Club London
Paget
Gorman Society
This organisation promotes a sign system used by many children
with speech or language difficulties.
The
Sleep Apnœa Trust Association
Aims to enhance the lives of sleep apnœa patients, their partners
and their families.
Tinnitus
Information on Tinnitus
Tinnitus
Action
Information including self help leaflets.
Tinnitus
research (Action for)
Support patients and research.
British Diabetic
Association
A leading UK association for Diabetics.
Children
with Diabetes UK
Support for children with diabetes and their families
Diabetics
Unite Homepage
Information on various diabetes therapy
campaigns and research.
Diabetic
DataCentre
Loads of information on Diabetes and related conditions.
European
Ass. for the Study of Diabetic Eye Complications
Information on diabetes and eye problems linked to diabetes.
Insulin dependent diabetes trust
3H Fund
The 3H Fund makes holidays available for physically disabled children and adults.
AbilityNet
A joint venture by the Computability Centre and the Foundation
for Communication for the Disabled to make computer technology available
to people with disabilities.
Access-Ability
Resources for the disabled.
British
Council of Organisations of Disabled People
A countrywide assembly of disabled people to represent their own
concerns at the national level.
British Dyslexia
Association
The national organisation for Dyslexia and Dyslexia Support Groups.
British
Ski Club for the Disabled
Information on skiing for the disabled plus links to ski slopes
which support skiing for the disabled
British Society for Disability and Oral Health
British
Stammering Association
Information and advice for stammerers.
Centre
for Accessible Environments
The information and training body on the accessibility to the
buildings and open spaces for disabled people.
Choices and rights disability forum
Contact
a Family
A large organisation supporting groups for a range of disabilities.
Cornelia de Lange Syndrome Foundation
Cottage
and Rural Enterprises Ltd (CARE)
This organisation, for people with learning disability, provides
residential accommodation and working prospects
Council
for Disabled Children
Encourages cooperation between organisations which provid
support for children and young adults with disabilities and special educational
needs.
Dial
UK
Disability Advice Information Lines.
DIEL
(Advisory Committee on telecommunications for disabled and elderly people)
Disabilities
trust
Care and residence for people with severe physical disabilities.
Disabled
Drivers Motor Club
Seeks to encourage disabled people to gain better mobility.
Disability
Equipment Register
A self help organisation for disabled people helping them to buy,
sell or exchange specialist disability equipment.
Disability
Net
An international news and information service for disabled people.
Disability
Now
Published by Scope, a monthly
newspaper for people with disabilities, parents and carers.
Disabled
Data Link Group
A support group for the disabled. The assistance available including
friendship, motoring help, and information on disability aids and
rights.
Disabled
Living Foundation
Their aim is to make life easier for people with disabilities.
Downsnet
The Down Syndrome Educational Trust information and advice.
Downs
Syndrome Association
Help for suffers of downs syndrome and their families.
Dyslexia
2000 network
Information and help on dyslexia.
Dyslexia
Archive
Information and help on dyslexia.
Dyslexia
Institute
Assessment centres, teaching and training to surmount dyslexia.
Dyspraxia
Foundation
Support for people and their families who are affected by developmental
dyspraxia.
Employment Opportunities for People with Disabilities
EXTEND
Making available recreational movement to music for disabled people
and those over 60.
Hallwick Association
of Swimming Therapy
Swimming and hydro therapy for people with disabilities.
Helen
Arkell Dyslexia Centre
Seek to take full advantage of educational opportunities and increase
the quality of life for dyslexics.
Holidays
for you and me
Self Catering Holiday Accommodation for the disabled.
Leonard
Cheshire
Providing a choice of services for people with physical and learning
disabilities in Great Britain and around the the world.
Limbless
Association
Advice and information for disabled people of all ages who have
been born without limbs or had amputations.
Listening
books
Listening Books (audio books) available to people who have special
needs.
Motability
Assisting disabled people to become mobile.
MENCAP
Charity for mentally handicapped people.
National Association
for special Educational Needs
An Association for children and young people with special educational
needs.
Opportunities
(For People With Disbilities)
Assisting disabled people gain employment.
Phab
(Physically disabled and able bodied.)
Works to bring able bodied people and those with physical disabilities
together on equal terms.
RADAR
(Royal Association for Disability and Rehabilitation)
Working for physically disabled people.(e.g. civil rights, employment,
social services, holidays, housing and mobility.
REACH
An organisation for Children with Hand or Arm Deficiency.
Rescue
Foundation For The Brain Injured Infant
Their goal is to optimize human central neurological health and
well being Their work embraces attention deficit, learning disabilities,
cerebral palsy, epilepsy, neural tube defects, hydrocephaly, and
aphasia.
Rehabilitation schemes and spinal injuries
Rescare
This organisation aims to help mentally handicapped people who
are in long term residential care.
Rights
Now
This organisation is situated in Northern Ireland.
Scottish
Sensory Centre
This organisation is situated in Northern Ireland.
Scottish
Spina Bifida Association
Working with suffers of Spina Bifida and hydrocephalus in
Scotland.
Shaw
trust
Helping mentally disabled people
to get work and training.
Skill
An organisation for students with disabilities. (Further education,
training and employment.)
St
Piers Lingfield
St Piers Lingfield is committed to helping children with epilepsy.
Thrive
( Horticultural therapy).
Gardening for people with special needs.
Values
Into Action
Uphold the rights of people with learning difficulties.
Wheelbase Wheelchair sports.
Whizz-kidz
A source for mobility aids for disabled children.
Winged
Fellowship Trust
Holidays and short stay residential breaks for people with physical
disabilities.
Cleft
Lip and Palate Association
This association helps those affected by cleft lip and cleft palate.
Changing
Faces
Support for people who have facial and other disfigurements.
Disfigurement
Guidance Centre
Guidance for people who are disfigured on make-up and disfigurement
concealment.
Lets
Face It (for the facially different)
Help and support for people who are facially disfigured
Positive
image
Support for people who suffer from disfigurement.
British
Colostomy Association
Information and supportfor
those who are about to have, or already have, a colostomy.
Crohn's in Childhood Research Association (CICRA)
This association is committed to creating greater awareness of
inflammatory bowel disease (Crohn's disease and Ulcerative colitis)
Cyclical Vomiting Syndrome Association
Digestive
Disorders Foundation
Supports research and information available on digestive disorders.
Ileostomy
and Internal Pouch Support Group
Support for people who have a colectomy (removal of their colon
and replaced by pouch)
Irritable Bowel Syndrome Network
Lactose
intolerance ("no cows milk for me thanks")
Help and information for people who are lactose intolerant, (
allergic to dairy products)
National
Association for Colitis and Crohn's (NACC)
For people who suffer from inflammatory bowel disease.
Androgen
Insensitivity Syndrome (AIS) support group (UK)
A support group for suffers of Androgen Insensitivity. Also includes,
Testicular Feminisation Syndrome, 5-Alpha Reductase Syndrome, Swyer's
Syndrome, Leydig Cell Hypoplasia.
Association for Glycogen Storage Diseases UK
Birth
Defects Foundation
Information, support and funding for reserach into inborn handicaps.
British
Sjogrens Syndrome Association
Information and advice on Sjogren's syndrome.
Churg-Strauss
Syndrome International Support Group
A support group for Churg-Strauss Syndrome
Contact
a family
Support and help for families who care for children with disability
or special need.
C.R.I.S.P
(Scotland)
Support and help for suffers and their families of Chromosomal
Abnormality.
Cri
Du Chat Syndrome Support Group
A support group for Cri Du Chat Syndrome.
Dancing Eye
Syndrome Support Trust
Bringing together parents of children with D.E.S.
(Directory of )National Genetic Voluntary Organizations
Downsnet
Information offered by the Down Syndrome Educational Trust.
Down's
Syndrome Association
Information and help for suffers of downs syndrome and their families.
Down's
Syndrome Association (The Scottish)
Works to improve the quality of life for everyone with Down's
syndrome in Scotland.
Down's
Syndrome Research Foundation
Information for parents on Down's syndrome medical research.
Ehlers-Danlos
Support Group
Information on Ehlers-Danlos.
Gauchers
Association
Committed to helping suffer of Gaucher disease.
James Stewardson Trust For Children With TPI (Triose Phosphate Isomerase Deficiency.)
Klinefelter's
Syndrome Club UK
Club for adults who suffer from Klinefelter's Syndrome.
Landau
Kleffner Syndrome (Friends of)
A support group for carers of young people with Landau Kleffner
Syndrome.
Laurence
Moon Bardet Biedl Society
Support and information for suffers of this syndrome.
Metabolic
Diseases in Children (Research Trust for)
Support and information for sufferers of metabolic diseases.
Mucopolysaccharide
Diseases (society for)
This society offers support to suffers of Mucopolysaccharide.
Niemann-Pick
Disease Group (UK)
A self-help group for this disease.
NSPKU - National
Society for Phenylketonuria
A support group for Phenylketonuria.
RSDS (UK)
Children's Support Group
A support group for Reflex Sympathetic Dystrophy Syndrome.
Shwachman
Syndrome Support Network
A support network for this syndrome.
Stickler
Syndrome Support Group
A support group for this syndrome.
Sturge
Weber Foundation
Support and information for this syndrome.
Treacher
Collins family support group
A support group for this syndrome.
Tuberous
Sclerosis Association
Support and information for suffers of Tuberous Sclerosis.
West
Syndrome Support Group
A support group for this syndrome.
Williams
Syndrome Foundation
Support and information for suffers of this syndrome.
British
Cardiac Patients Association
Help and information for cardiac patients.
British
Heart Foundation
A leading organisation in the fight against heart disease.
Cardiomyopathy
Association
Support for suffers of cardiomyopathy.
Children's
Heart Federation
A leading organisation for children with heart conditions with
information and help.
Down's
Heart Group
This organisation offers support and information to suffers of
Down's Syndrome and their families.
Grown
Up Congenital Heart Patients Association (GUCH)
Information and support for adults with Congenital Heart Defects.
Heartlink
Information and support for people with heart conditions.
High
Blood Pressure Foundation
Champion of those with high blood pressure.
Northern
Ireland Chest, Heart and Stroke Association
The Northern Ireland. association for chest, heart and stroke
illnesses.
Transplant
Support Network
Transplant patients providing personal support for others who
will have transplants.
UK Thalassaemia Society information)
Infections and Diseases
Daniel`s
Hepatitis C web site
Loads of information on Hepatitis C (Diagnosis, Causes, Signs
& Symptoms, Research, Prevention, Treatment, Medications and
Advice.)
Hepatitis
C Forum e-mailing list (HEPC)
An exchange of information on Hepatitis C, (e-mail)
Guillain Barre Syndrome Support Group
Lepra - British Leprosy Relief Association
Lincolnshire
Post-Polio Network
Information about Post-Polio conditions.
Meningitis
Research Foundation
Often in the news of late, meningitis.
National
Meningitis Trust
Information on meningitis.
Nephrotic
Syndrome In Children Support Group
A support group for children who suffer from Nephrotic Syndrome.
Transplant
Support Network
Transplant patients providing personal support for others who
will have transplants.
British
Liver Trust
Support for suffers of liver disease. Includes information
on hepatitis, cirrhosis, etc.
Children's
Liver Disease Foundation
Caring for children and families suffering from liver disease.
Daniel`s
Hepatitis C
Loads of information on Hepatitis C ( Diagnosis, Causes, Signs
& Symptoms, Research, Prevention, Treatment, Medications and
Advice.)
Hepatitis
B information
Information about Hepatitis B.
Hepatitis
C Forum e-mailing list (HEPC)
An exchange of information on Hepatitis C, (e-mail)
Primary
Biliary Cirrhosis Foundation
Information and support for people with this condition.
PSC
Support (Primary Sclerosing Cholangitis)
A support group for sufferers of primary sclerosing cholangitis.
Transplant
Support Network
Transplant patients providing personal support for others who
will have transplants.
Lung (breathing including Asthma)
Asbestos
Diseases Advisory Service
Advice and help for sufferers of Asbestos Diseases, includes benefits,
compensation, justice etc.
Asthma
and Allergy Information and Research (AAIR)
Information children who suffer from asthma and their families,
also included is information on allergies (food allergies, nut allergy,
latex allergy, anaphylaxis.) hay fever, allergy to house dust mite.
British
Lung Foundation
Support and information for suffers of lung disease. Also resources
research into lung diseases.
Cystic
Fibrosis Trust (The)
The web site of the Cystic Fibrosis Trust.
EFAnet
Information on asthma and allergy from the European Federation
of Asthma and Allergy Associations.
National Asthma Campaign Information about Asthma.
Men's
Health Issues (USA)
This US site contains items on prostatis health & gender, health
indicators, dietary tips, reproductive health, sexual addictions,
and suicide
Prostate
Cancer Charity
Opened in 1996 by doctors at Hammersmith Hospital, London. Its intention
is to improve the care and welfare of patients with prostate cancer to
raising funding for research and to provide support and counselling for
patients.
Prostate
Forum
The aim of the Prostate Forum is to make available education for Doctors
and other healthcare professionals interested in the management of prostate
disease.
Alzheimers
Scotland - Action on dementia
Information and help for people with dementia and their families..
Arbours
Association ltd
Support and and accommodation for people in emotional distress.
Asperger's
Syndrome (Society of Cambridge University)
Help and information on Asperger's Syndrome (AS).
Attention
deficit (Thanet ADDers U.K) (Hyperactivity)
A support group for Attention Deficit (Hyperactivity) Disorder.
Attention
deficit - ADD-ADHD Family support group
A family support group for suffers of Attention Deficit (Hyperactivity)
Disorder
Attention deficit and Hyperactivity
Disorder Support Group
A support group for suffers of Attention Deficit (Hyperactivity)
Disorder in the Bedford, North Bedfordshire, Buckinghamshire area.
Attention
deficit - ADDnet UK
Information and support for of Attention Deficit (Hyperactivity)
Disorder